Hi Snoopy -

Thank you. I'm trying to remain strong right now. Calling neuro tomorrow to ask him to get the ball rolling on the Tysabri. I know it isn't a miracle cure - and I know it takes time - but I don't want to wait to get started.

I will check out all the links you sent. I've read so much about MS and treatment, my head is spinning from that all by itself, let alone the MS. LOL

I try to keep my humor about me....sometimes I horrify my friends when I make jokes about the holes in my brain....but hey, they're my holes...I can talk about them any way I want to! We're becoming good friends, me, my holes, my grey spots, my lesions....

I'm already "showing up" my neuro. I saw him a week or so after I did the IV/SM - and he was shocked at how well I was doing (not that I was well) - but that I was doing so much better. He hadn't expected such a marked improvement so soon (though he filled me up with 1 GRAM of SM a day for 7 days - what did he expect?!). I told him I had no intention of going down silently - and that he should take the prognosis and rewrite it immediately!


Thanks for responding - it helped me feel less alone. This disease is a lonely one. And a tiring one.

~Keri