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Originally Posted by jccglutenfree
I used to hear in a perfect world that anti-endomysial and anti-tTG should be consistent, but they aren't always.
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The thing that bothers me about the endomysial test is that it's done by labs all over the place, but it's only accurate if it's interpreted by a highly trained special technician -- which most labs don't have. So most EMA test results are about as valid as flipping a coin. What in the world is the point of even *doing* a test that is known to be that inaccurate? Sigh....
Quote:
Originally Posted by jccglutenfree
...negative testing one year can turn positive a year later. I'm glad you did pester your doctor!
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I am glad too. But I believe that my daughter had active celiac disease when they did the first test, too, and the test was only negative because the EMA is a very inaccurate test.
-Valerie