Quote:
Originally Posted by valeriemates
The thing that bothers me about the endomysial test is that it's done by labs all over the place, but it's only accurate if it's interpreted by a highly trained special technician -- which most labs don't have. So most EMA test results are about as valid as flipping a coin. What in the world is the point of even *doing* a test that is known to be that inaccurate? Sigh....
I am glad too. But I believe that my daughter had active celiac disease when they did the first test, too, and the test was only negative because the EMA is a very inaccurate test.
-Valerie
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I think you are probably right, and I'm sorry your daughter was one who fell through the diagnostic crack
. I guess that is part of our mission... to help people understand that the diagnostic testing is not perfect and there is room for plenty of error in both false negative blood work and false negative biopsy.
Cara