Hey terry.

i really hope jesse benefits from the program

i currently have rsd in all 4 limbs (started in ball of right foot), my entire backside (head to toe), sides, so its pretty widespread. i started the program w/ rsd in both arms and from knees down but it spread whhile at pt.

right now for the rsd, i am seeing a pain management dr. he is really nice and respects my decisions. i am also seeing a dr for my blood pressure. i see lots of other drs every so often. i started lyrica a few weeks ago. since taking it, less flare ups but more severe. im on sleep medsalthogh they really dont work well... i am starting pt again in a few days. the lady seems nice. she said she is taking it nice and easy and will stop if it becomes too much. i have tried acupuncture........did not go very well....at all.

so far, i havent really found anything that has really helped my rsd. i do find it helpful to let my teachers know whats going on. they help me out a lot. one lets me lay on his couch during class , one is really good at telling if in having a bad day (she is a nurse, teaches health science technology) and will let me lay my head down and stuff, onewalked me to the nurse today in the middle of class. i hope your son has understanding teachers. that really helps. i do try to go to school as much as i can. i went homebound last year and HATED it. haha, try having ur spanish teacher offer to teach you all ur classes and not speak english very well. but being w/ my friends at school helps out. but sometimes school can be hard to tolerate. you have to know when its too much and when to take off a day or two.

right now, the only suggestion i have is if you dont already have one, try to find a pain management dr that your son trusts. if he doesnt like the dr, then much wont get accomplished.

good luck to both you and your son. i hope you have success in dr sherrys program. feel free to keep in contact.

nikki

by the way, for rsd in jesse's stomach, how do they do pt with that?