I'm so sorry - I wish they could give you a dx of something. Not saying that I hope you have MS or anything like that but a dx can at least confirm to you that it's not all "in your head" or whatever the doctor is telling you.
These appointments are stressful enough even when you DO have a dx - I will say a prayer for you that things go well and that you can get some relief.
I didn't have to go through the "limbo" experience but I can imagine how frustrating that could be. Here's a