First, all who mentioned "idopathic" as "idiot" - I've always made the connection - something this serious just doesnt happen!

Cyclops - on CMT, heriditary, etc... my latest diagnosis for last two years was CIDP - but early on I was told it was probaby heriditary due to having characteristic very high arched feet etc and early onset (but mild) in another family member of PN - and some testing was done by Athena at the time on available genetic tests for these and were negative (about 5 years ago)... I unfortunately dont have access to great medical care - but am seeing new neuro in two weeks - and want her to reevaulate eveything.... do you have info on any more availabe genetic testing I could get for hereditary neruopathies?

I was getting IVIG - and it did seem to help - but the infusions were brutal to endure - and based on what this new doc says and if she agrees its CIDP - then will start up again... however, if its not my true diagnosis - I certainly dont want to use a precious medication that others need so desparately....