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Grand Magnate
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Join Date: Jan 2008
Location: Red Wing, MN
Posts: 3,166
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Grand Magnate
Join Date: Jan 2008
Location: Red Wing, MN
Posts: 3,166
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Hi Kari! Like everyone else here, I'm sorry for the reason you found us, but I'm glad you found us!I totally understand the feeling of being blindsided by this dx..Nobody in my family (that I know of) ever had it, never even appeared on the radar. And you're right, it's funny how I never knew anyone with MS until I was diagnosed. Then they started popping out of the woodwork! 
The thing I hate most about this disease (and there are SO many things), is that nobody can tell you how things will work out. What's the course of the disease? How long will an attack last? Will I end up in a wheelchair? Or worse? Nobody knows..I was dx'd PPMS 3 years ago, and am doing relatively well..Still walk, still work, still take care of my family (though none of these things as well as I used to)..But it is like walking around with a giant boulder poised over your head, waiting to drop (or not, as it wishes). It's been said here before, and it's Oh So True, that control is just an illusion. I've decided to look at that as a positive, though. At least I KNOW it's an illusion. I can let go of the idea of being a "control freak"..LOL No control, but still a freak  . Just keep talking, hold onto your friends, and take advantage of the new friends you'll meet here. They're among the BEST!
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