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Originally Posted by 4boysmom
My SIL has suffered from migraines for years. Just before Thanksgiving she went to an opthamologist for her regular exam. She began experiencing severe headaches after that appointment and began losing vision.
They did an MRI thinking it might be MS and optic neuritis, but no lesions. After all this time, they did an angiogram ? of the eye, and they can tell that her optic nerve is damaged, and the sight she has lost is gone for good. They tell her it could be lupus or MS, but nothing is showing up on the tests for now.
They are sending her tests to specialists in SLC, but until then, does anyone have any experiences similar to this that may shed some light on her condition?
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Was she evaluated for pseudotumor cerebri? This is severe headaches, with loss of vision if untreated. It can only be diagnosed with lumbar puncture. If the lumbar puncture is elevated then certain diuretics are given to reduce the pressure. It leads to blindness if untreated.
Some drugs cause this. The tetracycline family (used long term in acne treatments or Lyme disease) and high doses of Vit A retinol are examples, but pseudotumor may occur spontaneously in people.
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