Quote:
Originally Posted by SurvivingMSwithHOPE
Hello all,
RW, I am not sure if they slowed it down, I was to nervous to notice! 
Before I say this, remember my Neuro said "All that has happened with me, well I am in the less than 5% that has a serious reaction" But of course, that would be me!
Today is first day I feel somewhat normal. My legs have been aching bad, headache came and went, I swear felt like a spinal headache. Just very achy, blah feeling and very fatigued all weekend and yesterday.
My Neuro called me today and said he definately wants me to stay on Tysabri, but my infusions will now take place at a hospital, to be close to doctors trained in anaphylactic emergencies. They are scared of how long it would take if they had to call 911  Well, heck, now I am scared.
Has anyone heard of anyone doing their infusion at a hospital due to a severe reaction? My Neuro is hoping my body will adjust to the medication.
So, I guess they will overly pre-medicate me or stand there until I can't breathe?? 
Trying to stay positive!
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Glad to hear you are feeling better today! Many people report the tiredness after infusion. I remember having a sore throat after my first two or three infusions.
In answer to your question about reactions, I have heard of a lot of folks having reactions with their first infusion.
In most cases the infusion was slowed, benadryl was administered, the reaction was stopped and infusion continued at a slower rate.
They were all advised to premedicate with benadryl pre infusion from that point on. Some do benadryl and Tylenol or ibuprofen. A lot of folks do Claritin so they don't have the drowsies.
In all of the cases I have heard of, the infusion was continued with a slower drip rate during following infusions.
In all cases the neuro was called and informed of the reaction, and was involved in the decision as to whether or not to continue.
I would follow my doctor's advice. Only you and your doctor can decide what to do if you continue to have problems.
