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Old 02-13-2008, 04:46 PM
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nopainever nopainever is offline
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Join Date: Apr 2007
Location: Orange County, CA
Posts: 157
15 yr Member
nopainever nopainever is offline
Member
nopainever's Avatar
 
Join Date: Apr 2007
Location: Orange County, CA
Posts: 157
15 yr Member
Heart DEsI...

Hi Sweetie...

It's Heather here...Not sure if you remember my experience with the SCS Trial or not, but I feel that I need to tell you since you asked for anyone's input, but I don't want to scare you.

I had RSD bilateral in my Rt and Lft feet and legs and after arguing with my doctor for a year I finally agreed to the SCS Trial...I always had a bad feeling about the darn thing...I got sick of him suggesting it, so I went ahead and went for it in Dec 06. For 10 days that thing was in me and it drove me nuts the 1st days. I couldn't stand the feeling...It made ME feel worse. The tingling added to my burning sensation and my legs swelled...Plus by the 4th day the leads (wires) had moved somehow in my spine and were hitting different parts of my body and the SCS was going CRAZY inside me...I had it off for the last 5 days of the Trial...

So, day 10 the Tech removed the leads and I went home...Within 2-4 weeks the RSD was traveling up my body: Up my legs, my stomach and back, and then to my arms and hands, until it finished at my face and neck...I thought I was going crazy and so did everyone else...Now I have full-body, systemic RSD...

I love ya and care about you so that's why I am sharing this with you...A lot of people love the SCS and have great results...I wasn't so lucky!

I wish you the best Desi!


Heather
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"We Will Conquer This Demon They Refer to As, RSD!"


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