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Old 02-13-2008, 06:41 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by Chris View Post
Thank you! I'm hoping to start sometime next week if they have time. I go to an MS Centre so they have their own infusion room. I'm hoping they will let me call them by cell when we're 10 minutes or so away so they can get everything mixed up rather than having to wait until I get there. They wouldn't mix it up until I was actually in the infusion centre the last time. I suppose they have to worry about people not showing up.

I'm so excited. I'm ready for a party!
The TOUCH protocol at my infusion center is that they don't mix until you answer the 4 questions.
If you don't answer them to their satisfaction or the infusion center has a problem, the drug doesn't get mixed until whatever their concern is gets resolved, because it has a short shelf life once mixed and it's pretty darned expensive yanno!

I hate that last hour! I am itching to GO and my nurse always laughs and tells me to settle down and let her do HER job.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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"Thanks for this!" says:
Chris (02-13-2008)