I did take Actonel for some time, but quit because my jaws hurt. This doctor wanted me to start on Fosamax, becase of long term steroid use, but I am afraid to take this.

My Internist is going to run more tests next week looking for some specific autoantibodies... I think he feels this is part of the autoimmune problems, and of course PN is a part of that... Maybe the nerves just don't like Allopurinol... They sure did not like the radioactive dye in the Nuclear Thyroid Scan... I had forgotten about that.

I am doing better tonight. I did skip it today and am taking some other things for pain+ice.

MrsD-good info on the Bisphosphonate site... Thanks!

Thanks all,
Cathie

P.S. Cy-the pharmacy info says that Allopurinol can trigger gout attacks at first... Internist doesn't believe I have this...