MomX7 - glad you finally got to the eye doc. I guess he should know, but I never heard that before, more than one kind of ON.
I hope you get more info on that so you can share and we all can learn a thing or two.
I also hope he can help you out with that - eyes are one of the most important things, I hate to think of you dealing with that. How are all those munchkins? Better I hope?
Sarah - most of the 1,000's of people I've*met* on these forums - like you - are pretty good at saying their sx, tests and results etc and comparing with others. and you get a real good idea of if one disorded fits you or not, or if somebody else fits your disorder.
Docs may not get that, but we know how it works. It's the only way I can tell where my sx are coming from, and what is not coming from my neck. The sx are so much alike form so many things.
It's so frustrating when YOU know and the docs will not listen. Hey, if they are right, then why do none of them agree? Which one is right? That's WHY we have to figure it out.
They told me I have ms, then no I don't yes I do, no I don't yes I do... I hate it. They act like I am the crazy one, where did I get the idea I have ms... maybe from them telling me I do? LOL. Why can't they make up their minds, tell me what it IS and stick with that?