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Member
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Join Date: Jan 2008
Location: Southern California
Posts: 308
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Member
Join Date: Jan 2008
Location: Southern California
Posts: 308
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I feel for all of you in limboland...
Hi everyone...
I just want to say that I feel for all of you in limboland....
After reading some of your experiences, I can feel your pain (and disgust) at what some of you have been put thru for years....and I've heard similar stories of people who have thru that only to have gone from possible to probable to confirmed MS dx.
I am not sure if I should be thankful that my MS came with a bright neon flashing sign that said "MS here: Vacancy" (I guess the big black holes left lots of room for visitors?!) - I never had problems until December 22....and of course with the holidays and all...didn't make it to a doctor until Jan 2 (at which point I went to see a dental specialist b/c I was certain it was my TMJ acting up - as the right side of my face was numb) - and he said go to a neuro...so on Jan 4 I went to neuro, who immediately sent me for an MRI...it was a Fri - and when I left his office to go get the MRI - I told him if he left for the weekend without calling me to let me know what was going on, I'd hunt him down...well, I'm not sure if I regret telling him that or not...because when he called on that Friday afternoon to say, "You have MS" - it kinda blew me out of the water. I had no idea. I thought I had a pinched nerve in my face! My life has been pretty intense for the last 6 weeks - sheesh, I can't believe it's only been 6 weeks  my life has been pretty rotten.
Part of me wishes I was in limbo land - b/c then I could just be in the pain I'm in (pretty bad exacerbation right now) - but with my head in the sand and not having to deal with treatment, etc. Switching from copaxone to tysabri right now.
Anyhow - point of this was to wish you luck - b/c I personally believe in importance of treatment....so I wish you all well...
~Keri
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