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Member
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Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
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Member
Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
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Might Have An Answer!!
Hey folks, a WARM and melting-snow-SPRING LIKE kind of welcome!!!
I saw my "other neuro" yesterday. THe one who I saw incase I was having seizures. He's a sleep specialist and conducted a sleep study with me.
I DO Have sleep apnea and my oxygen levels keep dropping all night. i am going back to have a 2nd study to determine what level of Cpap? I need.
He thinks this may be the source of why I have so many problems, incuding uncontrolled BP/HR. and get this NARCOPLESY with catyplexy or sleep paralysis.
I dont have the typical drop down kind of narcorlepsy but have sudden weakness, "altered consciousness" where it looks like I am unconscious or going "out" gradually. I then cannot comprenhend cognitively and eventually cannot move my body or talk at all !! I lOOK unconscious. THis had ended in several ER visits over 10 years and many inpt stays. I present like a TIA as one side is weaker or I cannot walk, as I loose my balance.
An MS MIMIC? hmmm.. no one knows. AND its not completely ruled out. Told him I still have buzzing tho my balance and cog problems have improved with nutrition.
Any way it will be nice in a month or so, to finally get enough oxygen while I am sleeping!! And not to be so tired during the day.
MANY MANY have sleep apnea and it goes untreated.
OH, he thinks my head shaking while I sleep (it wakes me up) is essential tremors, not related to this apnea/narcolepsy.
OH well, still have neuro problems,but not as bad as before.
Again the nutrition for the brain ALONG with detoxing toxins have really helped me neuro problems.
THought I would share all this... ya never know.
So much for the fibro DX. I really dont think the Lyrica helps with pain and it makes me sleep in a paralyzed way. I sitll take the baclofen that helps my spasticity.
Stay tuned... MISS and LOVE you all !! I am on your side
Jan[/SIZE][/COLOR]
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