Quote:
Originally Posted by greenjeans
That really sucks Julie....I'm so sorry you are having such a hard time. Sally's idea to see an MS specialist may be a good idea. Those who get a quick dx do because of ON or lesions....and then the LP confirms if needed. You and I both have neither....but some here were in limbo for many years....and that may just be our fate.
When I thought I had MS, I was so relieved that I could connect things finally...now...I'm walking around wondering WTF again.....I'm afraid to even mention the 'small' things still going on with me, in fear I'll be viewed as off balance (no pun intended). I don't know what more to do....and I'm tired of spending money on this.
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I can't seam to find a real MS specialist here but still plan on seeing this new neuro I heard about from a friend of a friend that's a nurse, she said he is the ONLY neuro she knows that really listens and really cares.
I have mixed feelings about telling Dr.'s all my SX, if they don't know whats really going on than I might not get the right DX but on the other hand if I tell them everything I look like a nut case
I feel like I can't win sometimes.
Oh but I LOVE my eye Dr, he was SO open with me. He tells me within minutes of talking with me that ON is one of the most things Dr.'s see 1st when it comes to MS, He brought up the MS thing not me.
Than he asked me what SX I have been having other than the eye issue. Than he said well that sure sounds familiar. I had told him I had an MRI after my eye acted up and the neuro said nothing showed up and he (eye dr.) said that ON doesn't always show easily on a scan. I told him the scan was only 20 minutes and with-out contrast, he tilted his head to the side and rolled his eyes, I wanted to LOL so bad.
Than he said that it can take some time before MS can be seen on a scan.