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Originally Posted by greenjeans
Thanks Brain....I'm so upset!! How could he say no MS when they didn't do all the testing? I can't believe it (tears!)
Looks like everyone got a full set of tests but me!!
I'm waiting to hear from the radiologist...the only one working today...that did the LP. I told him that day that I was being tested for MS, and he did say something about not having a full order or something...but I dismissed it at the time...I figured once I said MS, he'd do the right thing!!!
Here I am running around seeing a therapist spilling my life story and ... OMG!!
DH called and said to calm down. My Optho/Neuro is top dog in this town and about the closest thing we have to an MS doc I know of (he will be my second opinion as soon as he gets back on Monday)....Now I think he is going to tell me that the test is incomplete and my protein is at least 6 points higher than normal...On the results, it says some stupid stuff that I googled, and it indicates that it could be high because of antibiotics....of which I've taken none in YEARS!
This is an outrage....No, I don't want to do it again...what did the Neuro think? That it was FUN? What an IDIOT!
I've not said anything, but I've been really tired, dizzy and the hands and feet thing has continued. How could they dismiss me?
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It depends on the lab, which tests are run. On my paperwork, it says a lot of, *Test run, but not ordered* not charged or refunded. Something to that effect. Also says CFS savd? - Yes. I believe the other thing saved was blood taken at the same time (it was the only other thing taken).
(Also, on my papers, it does not say *Tube one, tube two* like yours does. And he took 4 tubes of CSF. Were they all exactly the same? Maybe, or maybe they dumped them all in one vial and tested it that way. I wonder if that matters?)
How long it was saved or where is anybody's guess. A little sluething and you might find some lab stuill has your samples. You MAY be able to get the CSF and blood sent to another lab for testing.
That would rock, no?
Just cuz you the other side of nowhere don't mean your stuff can't be sent anywhere on God's green Earth, see what I mean? It's a thought.