Quote:
Originally Posted by LIZARD
As for you...  I'm sorry about your MS. It sounds like it's not rapidly progressing, though. That's definitely good news.  My hubby's cousin's hubby has an advanced case of it. He uses a motorized wheelchair all the time now.
Curious situation with your sister. No MS lesions, that anyone knows of? No Chiari, for sure? Even a tiny herniation can result in severe symptoms for some, so she should be checked very closely. That's where Drew is really lucky. His herniation is considered fairly large, so it would seem that he'd have a lot of problems with it, but so far, that hasn't been the case. Thank God.
LIZARD |
I am lucky with the MS, although I did take the bull by the horns and go on a NON-mainstream medication that is working VERY well for me (fortunately). I was in much worse shape for a few years, before I found this option.
It it is odd about my sister. She's had plenty of MRI's, and the only thing that's shown up is the syringomyelia. Apparently she definitely does not have Chiari either.
We're from Canada, but her and her husband relocated to Chicago a few years ago, and she went to one of the best specialists in the country before she finally got the dx.
Her worst symptom is swallowing, although it might not be related to the syringomyelia either. She has terrible fatigue, TMJ, and a number of other symptoms that are so similar to MS though. Time will tell, I guess.
Autism can be a struggle, eh? I have a number of friends who have kids with this condition, some fairly effected, and others not so much. Interesting that you are connecting this to the Chiari; I haven't really had enough experience with this to have considered that. Do you have any information on this condition and Chiari, by chance?
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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