Hi Andrea..
I tend to think Ali's friends ma must be convinced that is whats wrong her.. I remember how nuts I felt when I did not know what was wrong with me, even with a firm diagnosis we do tend to get the odd therapist who says its in our head.. we have all read how early treatment is so important and so has her mom I would think.. if I was sure this was whats causing my child such extreme pain I would be desperate for a diagnosis to get her treated too.. if not RSD then what is what I would be saying to the docs.
On another note I wanted to tell you how absolutly thrilled I am that Ali is going to be getting HBOT treatments, I would love to have that opportunity here too for both my son and I.. My son Danny has CP and autism he is 23 years old, the research on HBOT and autism lately are showing they are actualy bringing more awareness back to children and youn adults who have been locked in their own world for so long, little by little with HBOT sessions.. but so very huge a benifit that I thought just wasn't possible, the most clarity I ever seen in Danny was when he' had a fever.. it's like he wakes up somehow when this happens but sadly it never lasted past the fever time. But aparently the HBOT realy helps clear the fog somehow and I believe it will help Ali alot as well, with her inflammation and her circulation more normalized her pain levels should go down.
Hugs
sandra