Quote:
Originally Posted by Gazelle
I'm actually on Copaxone. The Hopkins guy says that he isn't sure I need to be. Ok, fine. I don't like sticking myself every day either. Makes me feel great about taking it.
But I do (or don't--depending on who you believe) have brain lesions (and if the Hopkins guy is wrong, I do according 2 neuros).
What gets me is that my first neuro said in 2003 that a spinal cord lesion couldn't account for the SX I was having above the thoracic level. I also asked him about sub-MRI level lesions and he said that was a possibility. His partner saw two lesions in 2005 and DXd me with MS.
I don't know anymore. I'm more frustrated now than I was before. Maybe there is an MS dx in my future that all can agree on. I just wish that I knew whether or not I should be taking the Copaxone. This isn't an easy decision--stop it and risk or take it and not need it.
Seriously, what do you do in this situation?
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I don't take the CRABs, but that is mostly because medications and I just don't get along at all.
I am not sure that I would take them anyway, but that is just me.
If you have brain and spinal lesions, and you've already adapted to Copaxone, I'd say you may-as-well stay on. It sounds like you do have MS, and that is what most neuros would recommend.
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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