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Old 02-16-2008, 11:00 PM
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southie southie is offline
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Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
15 yr Member
southie southie is offline
Member
southie's Avatar
 
Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
15 yr Member
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Thanks Sue, I had been on and off with
peri and menopause; and then back to
normal - it's been asinine since I was
36. However my Doctors had me to keep
a log since fall of 2006 and now they have
a more specific track record.

I see the Neuro on the 19th after being
bumped up from the 26th, so just a few
more days ...

Had always been irregular since I first
started after 9½ years but before 10 years
old, and the cycle could start anywhere from
15 days to as long as 62 days (was recorded),
but I've been known to go as far as 53 days
and I've been known to have two cycles in
one month. Enough to drive you batty!

Gynecologist had been at his wits end long
time ago and threw in the towel; not even
the birth control pills would work - it either
was null and void effect or it actually provoked
seizures, for example.

My mom had been wanting me to have the
hysterectomy done but like the Epi said several
years ago, that the problem wasn't down there
but up here (pointing to the head).

I was even given Diamox and told to take it
15 days before the cycle starts ...

NOW you tell me when that 15 days is going to
start? And oh the frustration ... Diamox was
scrapped in a hurry.

But now the Doctors have seen it all, that this
specific area that hasn't been under control,
typically 2 days before the cycle starts, I get
slammed with seizures - no warning whatsoever,
they just hit me totally unexpectedly. So I am
unsure how the Neuro or my Doctors are going
to handle or treat this.

My ID should be Premium Irregular!

For that's what I've always been.

===================

Words & Numbers:

My diet is fine, I am very active - but they're
right now very concerned about this sudden
spiraling of my weight loss (even though I've
been on these same AED's for a long time and
it's not the meds); and they've performed
extensive lab work-up numerous times to find
other possible medical problems that might
be there (ie: diabetics / hyper or hypo thyrodism,
etc), but it's just my body is shutting down.

I am not a surgical candidate nor do I qualify
for any other options but medications.

They have all kinds of Scans & EEG's of all types
and it's all there and it's getting worse and worse.

So I am curious as what the Neuro has up in his
sleeve.

(I am also grateful and thankful that my Primary
and Neurologist - both being Professors, especially
my Primary who was a very long time Professor and
my Cardiologist who is superiorly brilliant and has
knowledge in Neurology as well - they all are in tune
with each other.)
__________________
Sharon

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