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Elder
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Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
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Elder
Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
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Here are a couple of really good sites that offer a great deal of information including ways to raise awareness about RSD.
American RSDHope
http://www.rsdhope.org/
Reflex Sympathetic Dystrophy Syndrome Association
http://www.rsds.org/index2.html
I understand your frustration and fears. Unfortunately many doctors have never heard of RSD so many people are misdiagnosed or can go a long time before they do get diagnosed.
My doctor knew very little about RSD before me. I guess I was lucky... his nurse practioner had just come back from a seminar where RSD had been highlighted. The nurse practioner recognized the symptoms and called the doctor in to the room. My doctor sent me to a couple of other doctors for a second opinion. All concurred with RSD diagnosis. Then my doctor called around to pain management doctors until he found one who had knowledge of RSD and had treated others with RSD.
What kind of treatments or medicines has your son received?
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My avatar pic is my beautiful niece Ashley!
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Rest in Peace 3/8/90 ~~ 4/2/12
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