Junior Member
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Join Date: Jan 2008
Posts: 28
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Junior Member
Join Date: Jan 2008
Posts: 28
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Dolfinz, it is not recommended for those of us with rsd to use ice. Heat is fine but no ice. Prior to my rsd I had severe pain in both shoulders and had to carry my one arm, had trouble raising them also, getting dressed was hardly worth it. Anyway my problem was calcium depoisits laid down and around the muscles and tendons. After 2 cortisone shots to each arm they wanted to do surgury even though only had 50/50 chance of improvement. I talked them into one more shot and thankfully it worked. Still have ocassional problems. Shots are risky for us though, I don't know if prednisone would help,although it will get the inflammation out.I really feel for you, I know you are miserable. Ask your doctor for more options,maybe it is the rsd and not frozen shoulder. You need to be careful with PT as it can make the rsd worse. Make sure your pt is knowlegeable about rsd, if not find another one. If he is your only option get him material on rsd so he can read and understand it. I would be real careful with that rsd shoulder as you don't want it to spread. For info try American RSD Hope or RSDSA. Seeing as you have only had rsd for 6 mos you might want to participate in the study that NIH is doing with Neurotropin. Go to their website to see if this interests you. I went 5 yrs ago and it really helped me. All expenses are paid so don't worry about that. But once you get close to that 11 month mark they may not take you. Three more weeks and they would not have taken me. Great people, nicer people you will never meet. If you want to talk more about it I will be glad to tell you my story. I wish you luck. Marilyn
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