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Old 02-18-2008, 03:04 PM
oldaugie oldaugie is offline
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Join Date: Dec 2007
Posts: 1
15 yr Member
oldaugie oldaugie is offline
New Member
 
Join Date: Dec 2007
Posts: 1
15 yr Member
Default I've got it too MMNCB

Quote:
Originally Posted by Braveheart07 View Post
Hi,

I am new to this post----just wondering if anyone has had experience with Multifocal Motor Neuropathy with Conduction Block and what has worked for you. I am scheduled to receive IVIG therapy soon, and am curious about that as well.....Any info. would be greatly appreciated..
Thanks !! Doug

Hi Doug:

I was diagnosed with MMN with CB in October and started IVIg treatment immediately thereafter. The IVIg worked wonders for my mobility issues (prior to the treatment I'd essentially lost the use of my left hand) in that they appeared to come back fully within the first 7 days.

The IVIg has not been bad - Luckily I';m in a position to take enough time off so that I don't have to work on treatment days as I find that particularly difficult.

The most difficult thing I'm struggling with now is the stamina/fatigue issues. I'm getting a relatively aggressive treatment of IVIg (5 days in a row, every 4 weeks for 6 months) and am hopeful that as I get backed down to a maintenance dose my stamina and strength will improve.
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