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Snoopy · 02-19-2008, 07:15 AM

Quote:

Originally Posted by RedPenguins

Probably the thing that is getting me is that on Fri at my neuro appointment, he let me know that he doesn't think it is RRMS...SPMS at best....but who knows. I haven't told anyone yet - except for my therapist today. Like I said, trying to hold it together.

This concerns me.

As you have said your 6.5 weeks into this. It's waaaay too soon for your neuro to decide your SP, he may be right and you might be but in my unprofessional opinion he is jumping the gun on labling you and in the process scarying the hell out of you - like you really need that right now

Have you considered seeking the advice/opinion of a second neuro. Believe it or not neuros are not created equal.

Ever since I started doing MS forums (which has only been a few years) I have tried to remember what it was like to be newly diagnosed.

There were so many emotions that I remember - fear was a big one, obsessed with the disease and discussing it to the point that my husband finally told me it was time to move on and do what we had to do to live our lives. MS had become my whole life.

Many here will tell you there is life after diagnosis, that life does go on and it can be a good life even with MS.

Keri, try and calm down. Nothing is going to get resolved quickly. If you choose to treat this disease aggressively then do so and know you can talk to us.

As far as playing the violin for you or giving a pity party - Don't worry I'm not very good at that. For the most part I am not warm and fuzzy when it comes to my responses