You're quite correct in that there are not too many people out there who have that type of neuropathy, although I think there may have been a few fluttering around our neuropathy forum here from time to time, which I highly recommend you visit (if you haven't already):

http://neurotalk.psychcentral.com/forum20.html

There's certainly a wealth of information there that is applicable to any autoimmune neuropathy--and a lot of empathy besides.

BTW, make sure they also monitor you for rogue monoclonal antibodies, which are often associated with anti-MAG--these are usually ascertainable through immunofixation electrophoresis. The reason, unfortunately, these need to be watched is they can be the precursor of certain types of blood disorders:

http://neuromuscular.wustl.edu/over/labdis.html#mag

http://neuromuscular.wustl.edu/antib...imdem.html#mag