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Old 02-19-2008, 07:40 PM
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volada volada is offline
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Join Date: Feb 2008
Location: Maryland
Posts: 61
15 yr Member
volada volada is offline
Junior Member
volada's Avatar
 
Join Date: Feb 2008
Location: Maryland
Posts: 61
15 yr Member
Thumbs up telecommuting is a great idea!

Quote:
Originally Posted by snoodles View Post
Wow Volada,
Slightly over 2 weeks from your first symptoms to your dx - that is amazing !!! I'm sure it was a huge shock but also at least you aren't stuck in limbo for years of hearing yes - I think you have MS.... no - don't think so... not sure - need more info...

As for me - I cannot tolerate bright lights and we have flourescents at work - arrangements have been made for me to have no direct lighting above me.

I telecommute often.

I have flexibility in my schedule -

I work for a very large company however and I think that makes some difference. But what I honestly think it all comes down to, is the person or persons that you directly report to. They can be great and bend over backward to assist you, or they can be hard core and make it very difficult. Even in our company - I have been treated wonderfully well, not because of "me" but because of who I have had the good fortune to work for. I have seen others, in our same company who needed assistance and didn't seem to have it go as well.

Having said all that - I hope it all goes well for you tomorrow and most of all, I hope you have someone who will go to bat for you and value you.

Best of luck !!!
thanks for your insight..it is good to hear about positive results...i may have to invoke the chain of command for this one--i have been in the federal gov for 10 years now but only at my current place for just over a year so it is weird to have this dx happen at a place where i am so new!

as you point out the last two weeks have been a real shock and i am so glad i found this space....you all are very helpful and i am glad you are here even if it is a "virtual" thing! take care, mary
__________________
1st symptoms--01-27-08 (blurred vision)
dx 02-12-08
confirmed with neurologist 02-15-08 spinal tap 03.03.08
started avonex 03-14-08
july 2011-ish....lesions on the spine (at least two!)
.

started rebif 12-01-11

You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I have lived through this horror. I can take the next thing that comes along.' You must do the thing you think you cannot do. Eleanor Roosevelt
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