Hello there,

I think that RSD/CRPS comes in so many shapes and sizes it is very hard to establish whether you really have it or not if depending on having the whole gamut of symptoms.
I have a friend whose only symptom is pain, she has NO colour changes now, no deformity, no dystonia---just pain.
When she was diagnosed however she did have swelling, sweating and colour changes. Her diagnosis was made on the strength of that.

Unfortunately a forum for people with RSD/CRPS is not going to be the place where there will be much response from people whom have got better.
They have no need to visit sites like this and often feel it is the last place they want to go.
This makes it very hard to establish the true statistics. I trust the members of my medical team to tell me the truth about their successes and have lost contact with many people who attended my pain group who have got better.
Cheers and luck
Tayla