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In Remembrance
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Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
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In Remembrance
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
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Dear Friends and Supporters,
Since the ALS TDF story began seven years ago many of you have asked about my brother Stephen and the beginnings of our revolution in ALS research. And while I have tried my best to capture both in words, there has always been that bit that just can’t be spoken or written.
Despite his paralysis, Stephen continues to be the brother I have always known. Yet the realities of ALS keep many of you from having the pleasure of knowing him in his own right. This year an independent documentary film about Stephen, my family, and the formation of ALS TDF is making it possible for you to meet him in his own voice and words.
The last 7 years have been an amazing journey - together we have made so much happen so fast so I am very excited to introduce you to the aptly named So Much So Fast.
From West City Films: So Much So Fast
http://r.vresp.com/?ALSTDF/bac4ef322...b50a88/230acf4
From the Academy Award nominated directors of Troublesome Creek, Steven Ascher & Jeanne Jordan, comes a new documentary film, So Much So Fast. A black-humored cliffhanger of romance, guerrilla science and the redefinition of time, So Much So Fast unfolds like a nonfiction novel. Stephen Heywood finds out he has ALS. His brother Jamie becomes obsessed with finding a cure. And the woman who’s falling in love with Stephen has a decision to make.
Made over 5 years, So Much So Fast tracks one family's ferocious response to an orphan disease: the kind of disease drug companies ignore because not there's not enough profit in curing it. In reaction, and with no medical background, Stephen's brother Jamie creates a research group and in two years builds it from three people in a basement to a multi-million dollar ALS research center.
Opening Now In: New York, Boston, Indianapolis, Silver Spring, Fort Wayne, Salem OR and more. Visit http://r.vresp.com/?ALSTDF/9b9fb262a...b50a88/230acf4 for screenings
Thanks to the generosity of the filmmakers, ALS TDF has been given the permission to use the film for a select number of special screenings as fundraisers for the Foundation. If you would like to host a screening to help raise money or awareness for ALS please contact Molly Cotter (mcotter@als.net) at 617-441-7249.
Your friendship and ongoing support make what we started seven years ago possible - thank you.
-jamie
For more information on our current research or to donate please visit our website at http://r.vresp.com/?ALSTDF/3d3b8d1af...b50a88/230acf4
James Allen Heywood
d'Arbeloff Founding Director
www.als.net - jheywood@als.net
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