Thread: Mini vent......
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Old 02-20-2008, 12:11 PM
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momXseven momXseven is offline
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Quote:
Originally Posted by lady_express_44 View Post
Well . . . no.

You may very well have MS, and no doubt they were suspecting that from beginning based on the bizarre set of symptoms you had . . . but:

1. Under further/more intense investigation, the combination they WANTED to see just did not present itself, AND
2. The objective testing did not indicate MS

I'm trying to think of a comparison, but it's hard because MS isn't clear-cut, like most illnesses.

My daughter's 11 yr old best friend has been sick to her stomach for about 5 yrs. She couldn't hold down food, she had anxiety attacks, she had bowel issues, etc. The doctors and specialists had done every imaginable test of her digestive system, etc., and they finally came to the conclusion it must be emotionally based.

Last summer she was dx with terminal brain cancer. She now has 3 inoperable tumors.

Obviously the way the condition presented itself was not "typical" for brain tumors. It just didn't "look" that way . . . but clearly it was.

You are presenting with a number of totally unrelated symptoms, and MS is one of few conditions that has a number of seemingly totally unrelated symptoms. That's why it makes sense that it might be MS.

On the other hand, they want to see a combination that makes sense for MS, like the numbness is combined with burning, electric shocks or flushing. Sensory symptoms are often associated to spinal lesions, and spinal lesions are often associated to bowel and bladder problems. Who'd have thunk? . . . but THEY know this.

I do get cognitive problems with spinal lesion attacks. I also get mobility problems, spasticity, etc. at the same time, usually. The combination they WANT to see though is I.E. numbness + electric shocks + certain bowel issues . . . then they KNOW it is my spinal lesions acting up. And, depending on how far up the spinal lesion is, they EXPECT to see numbness in specific parts of the body (not one hand, without the torso, or the face, without the chest).

So, between your symptoms and the testing, it's just not adding up for them right now. HOWEVER, many of us start out with adhoc symptoms . . . that we also have a very hard time describing . . . so certainly MS can not be ruled out yet.

Cherie
Thank you. I do have a lot of bowel issues (IBS symptoms, no warning when need to go, feeling like I need to go but can't when not constipated, I could go on) and I think I am unable to empty my badder all the way a lot of the time. My neuro said I needed to talk to my PCP about all this, it had nothing to do with my numbness.

I'm also still wondering if the hemangioma they found on my spine could have been a lesion and not really a hemangioma because I read that sometimes a hemangioma is mistaken for a lesion.
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