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Wisest Elder Ever
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Join Date: Jan 2008
Location: Deep South
Posts: 21,576
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Wisest Elder Ever
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
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I know where you're coming from, Beth. I, too, tend to downplay and hide my symptoms. Mostly because no one really "sees" me at my worst.
During the day when I have to take a nap or not complete something because of spasticity pain or just fatigue.
When the pain in my arms and legs just gets to me and I cry. Or when I end up taking something for it (Neurontin) and that makes my balance issues worse. There is usually nobody here to share the experience with me.
So. . . . when they ask "how are you" my canned response is "fine". Then...when I do complain about something it's sort of a shock and everyone gets worried. Or when they actually see me on a "bad day".
I just wish they could "know" what I go through without them having to have MS!
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