I agree your idea is very helpful for the reasons you've indicated. Another reason is that a lot of times people (dx or undx) don't even suspect a symptom has anything what-so-ever to do with MS . . . but this misunderstanding could actually be detrimental to our care.

To this day, I still run into lightbulb/a-ha! moments when someone mentions something I've either ignored, been too embarrassed to ask about, or I had no idea was related to the MS. Thankfully, if things get too worrisome, I have a great doctor who humors my every whim.

I think the cons outweigh (though not out-number) the pros in going down this path of detailing symptoms though. As it is, I am usually quite careful about giving away TOO much information on the net (well at least in one thread/posting), as I am aware that people can:

- mistakingly take any advise/opinion as "absolute"
- draw a line from one thing to another and second-guess the professionals.

During my testing, I find it's funny that I often get "good" results on tests I was sure I failed miserably on, and "bad" on things I thought I was doing well on. Obviously what they are looking for is not always what we think it is.

This MonSter almost always gets ugly at some point. I care just as much for helping the undx people get the right dx and treatment, but sometimes I think we do them a dis-service by encouraging them to challenge every MS leaf unturned.

I think you are right too, Catch, that the information that is out there is vague for a reason. I also agree with tkirk that our "lack of description" can also be a good indicator to doctors.

Touchy subject.

Cherie