Quote:
Originally Posted by dreambeliever128
I have been to 4 PM Drs. and they did nothing for me. My PCP sent me out to them and they were useless. I won't even give my opinion of most of them.
Your Dr. might be seeing 112 RSD patients right now but that is 112 out of how many people in this world today. The one PM Dr. that comes to mind around here takes care of people with neck problems, back problems, and RSD, Fibro. I know a lot of people that have gone to him and he's a pill pusher and knife happy. He has lost his license once and even practiced while they were lost.
I saw 3 at the U of C. One I liked but he left, the one was young and knew nothing about RSD, the 3rd was a joke. We use to have a girl on here that went to him and he messed her up to the point of a lawsuit. I can't think of her name right now. She lived in Fort Collins.
I saw one in the Springs, he handed me meds and that was it. Didn't recommend anything else. I had a hand surgeon that knew more about RSD then the PM Drs. I have seen.
My Dr. got me the blocks, the PT, the meds, and read up on the RSD to take care of me. I'm ok where I'm at. He will give me anything I want for pain also and send me out anytime I want to go but I just got sick of trying to find a decent PM Dr.
I have my Neurologist, Urologist, Gynocolgist, TOS Surgeon, Hand Surgeon and all of my other specialist I need. I am most likely in better shape today then a lot on here who have PM Drs.
I don't think that there are enough RSD people out there that makes the government push research enough.
Thanks for caring though.
Ada
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Ada,
My point in telling you that my PM doctor has 112 RSD patients was to show that it is NOT an unrecognised disease---well at least here in Australia it isn't.
My doctor is only one of at least a dozen Pain Management Specialists and teams who treat RSD in my city of 2.5 Million people.
Medications form just a small part of our treatment that includes, blocks, ketamine and magnesium infusions, physiotherpy with graded motor imagery and mirror therapy, psychology, hydrotherapy and Hyperbaric oxygen therapy.
For those who do not respond to these then there are SCS and Intra-thecal pumps.The rationale is of course to diagnose early and prevent the disease ever getting this far.
Any doctor who calls himself a Pain Management specialist yet doesn't know how to treat RSD needs to be struck off the register as RSD patients account for a large percentage of patients who need help with pain.
My suggestion to anyone when you get referred to a doctor for treatment of this disease, is to not even set foot in their door until you have details of how many RSD patients they treat and how they do it---You are wasting your valuable time- and perhaps your ability to get better--just as you seem to have done Ada
I struggle to think that other developed countries are not as well versed in this disease as we are here in Australia. We are a small country, certainly a smart and economically sound country,but our doctors travel the world to learn about RSD/CRPS. The last conference was in Boston and the one before in Berlin, I am sure there must have been more American doctors there than those from other countries.
My doctor went to both and he came back with all the latest treatments for RSD/CRPS as well as being educated in the latest research. It is there for those doctors who want to learn.
I don't know what can be done to initiate interest over there---I am very, very sorry if it is as bad as it sounds from a large number of people here at NT who have shared their story.
Thinking of you
Tayla
