Hi Michele,

In one of your messages you say: "I could scream sometimes... but usually I end up crying because of the pain".

Can you describe the pain? Is it extra, extra bad burning, tingling, prickling or something else altogether? I hear about neuropathic pain and don't quite know what it is or how bad it can get.

I don't want to highjack this thread but Michele and others with neuro pain how would you describe neuropathic pain?

I just know what discomfort that I have and although very annoying and it wears me down, I haven't started to take any Lyrica or other PN targetted pain meds. Just quite a bit more paracetamol (general analgesia) the past few months.

Apart from 24/7 burning/buzzing/fasciculations, two examples - it is summertime here and everytime I go into an airconditioned building or turn our AC on, it's like my lower legs have the sensation of being wrapped in an ice blanket and it is not at all pleasant. Way different to what I have ever experienced AC to be ever before. (This is my first summer with it). Conversely when having a shower the water on the lower legs feels way hotter than on eg. the shoulders which is ridiculous as the water cools, if anything, as it falls. All the feelings are confused and definitely weird!

Look forward to hearing how you go at the specialist neuropathic centre.


Megan