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Senior Member
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Join Date: Jan 2008
Location: Former Midwesterner now retired in Arizona
Posts: 1,009
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Senior Member
Join Date: Jan 2008
Location: Former Midwesterner now retired in Arizona
Posts: 1,009
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This is a really interesting thread to me.
I have been diagnosed CIS (Clinically Isolated Syndrome) because I show every sign of MS but have had only one band in spinal fluid out of seven LP's which is not enough for a definite diagnosis.
I have spent about 10 years, lots of repeated tests, several neuros, a closet full of MRI films (five brain lesions), and money spent on co-pays seeking a diagnosis.
I understand those in "limbo" because they just want an answer. I was at the point of obsession and going to different web sites...yep I got that and that so it has to be this!!
Okay; it's MS; no wait it's more like ALS!!!
Finally I asked my Neuro; am I ever going to get an answer to what this is and she said "some people have all the symptoms of a disease but can't be diagnosed as definite". That is when she said I had CIS.
I have my answer; no more tests, no meds and I see the Neuro in a year.
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