Quote:
Originally Posted by lady_express_44
This lady, who was on another MS forum, would often come on with "similar" symptoms to what we have, but she never really nailed them. We would respond according to our interpretation of MS, which wouldn't ever really answer her questions.
She knew she was sick, and had her mind made up that it was likely MS because everything seemed so similar. This went on for a few years, and it was hard on her and everyone else who were sincerely trying to help her. All of us were very upset to learn it was ALS. 
Cherie |
Quote:
Originally Posted by Koala77
Thanks for that link Cherie. That is so sad, but it depicts exactly what I was talking about. We have many people here in Limbo, and a good many more lurkers. I do not want to detract in any way from anybody who remains undiagnosed and that person's symptoms, and I really do hope that most people do not end up with the MS diagnosis (or anything worse).....but.....at the same time, I could well imagine people associating with a list of descriptive symptoms from any site, and that could sure muddy the waters for a doctor trying his or her hardest to find a correct diagnosis.
Please ..... Limbo Landers....no offence intended.
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This is exactly my concern with such a list. DBF's step-dad has ALS. While we have similar symptoms we have entirely different diseases. Mine is only chronic, his is terminal.
Additionally, brain tumors can cause symptoms similar to MS. My brother recently passed away due to a brain tumor and it amazed me the similarities.