of a very useful website we all refer to here often:
http://neuromuscular.wustl.edu/antib...imdem.html#mag
It is pretty specific about IVIG for anti-MAG. I'm sorry that you have this all. I've CIDP and have been receiving IVIG for almost 4 years. It is precious and crucial stuff for me. I couldn't function well without it, really.
In a way I was lucky that I 'skipped' trying prednisone or other similar meds due to other medical conditions. I also admit I have been fortunate in that I've only had two reactions to infusing. One minor side effect, and one not so good. But two in four years isn't bad at all!
I have heard of folks on Rituxan and Immuran for immune neuropathies, many are in trials...and my insurance [like yours] still is considering it 'experimental'. Some folks it seems are able to get assistance thru the drug manufacturers to have access. I can find the resources if you PM me or ask here.
Honestly, only this month there was a 'clinical trial' finished regarding the use of IVIG for CIDP. And it's been used for it for over 20 years and still not approved by the FDA as it's now considered an on label-use! It should be soon tho, I truly hope and pray.
I know that there are others here using IVIG, besides Melody's Alan. Kmeb is one when she can tolerate it. And there are others who peek in now and then.
Here is hoping that it KEEPS WORKING for you! - j