I have daughter who is 15 months old (13 adjusted) who had an IVH (grade II) and needed a temporary shunt. We thought she wasn't going to ever need a permanant one, but last week at her neuro appointment they decided to tap her shunt and though they couldn't tell if the pressure was normal or not because she was crying so hard I think it was high because later that night we had to take her to the emergency room because spinal fluid was leaking out the hole where they had tapped her shunt.
We go back on Tuesday and they are going to sedate her for the procedure. Anyway, her neuro gave us the impression that she may start hitting her milestones once the pressure is relieved if it is indeed high. Has anyone experienced this? Her cognitive and fine motor skills are fine, but she is having trouble sitting unassisted for longer than a minute. Also no crawling, pulling up, walking, etc.. Her legs have slightly higher than normal tone and her trunk is low tone. Any input would be appreciated.
Niki