Quote:
Originally Posted by greenjeans
Thanks Erin,
I do think I'm going to find myself wondering for along time to come....what is really going on! I almost find myself hoping I'll have an attack so it will be looked at again, as a new symptom. I don't know how many times I have to have an attack of some kind for them to take 'time/space' into account. I've had 4 seperate attacks, three of which brought on new symptoms, over a 9 year period. I've never researched MS until the past 6 months, so I had NO idea what I may be experiencing, and since I didn't have one doctor all these years...my records are all over town 
I'm okay in the tube....I just close my eyes and count the bangs (OCD!) LOL!!!! I feel for those of you who get clostrophobic!! |
Four separate attacks in nine years and they still havent diagnosed you? Why wont they diagnose you?
I had three attacks in one year and got diagnosed in four months. First obvious symptom was numbness in my right hip/thigh that a PA misdiagnosed as a sprain. Told me to put heat on it. No one would take me seriously about it.
Then came the ON and again I wasnt taken totally seriously by anyone other than my regular doctor and the optho. I didnt do steroids because they were acting as if this was a first attack. (the neuro and neuro-optho both said that the numb hip had nothing to do with the ON)
I felt like crap that winter. I knew something was wrong but couldnt get anyone to listen to me. Finally went back to my regular doctor because my low back was killing me and my feet were freezing cold/burning hot/felt like I had a boot full of thumbtacks on my feet.
The regular doctor (Dr. C) is such a cool guy. He ordered the spinal MRI's and he's the one who got the neuro to listen and they found two lesions in my spine. I LOVE Dr. C! (the fact that he's total eye candy helps too)
I was really surprised to get diagnosed so fast. I thought it would take a few years.