Joanna, it certainly is a benefit to your daughter that you are so "on top" of her care and what is being stated about her health/condition. I wish I'd had that when I was young, but... hindsight always lends itself to 20/20 vision (wherein everything is so clear when I reflect about what if, what might have been, what could have been).
Just keep on making notes, and also: Don't hesitate to even take them (notes) with you to appointments.
I've yet to encounter a doc whom appeared "miffed" about going over things with me point-by-point.