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Originally Posted by debbiehub
I met that man in Manhattan at last years RSD walk- He was very nice and definitely has RSD. I too was suprised they never mention RSD. I called to participate in that study but they are only taking people with RSD in one limb. So we continue to suffer....I am glad it is helping him a bit!
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My husband consulted with Dr. Cruciani in November regarding the treatment. He said that they were going to start offering the treatment outside of the study sometime in December. My husband is considering trying it. Dr. Cruciani volunteered that he had tried it so he would know what it is like. I have no idea what the cost would be or if insurance would pay for it, but anyone interested should call again.