Member
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Join Date: Sep 2006
Location: New York
Posts: 461
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Member
Join Date: Sep 2006
Location: New York
Posts: 461
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25 % of PN is ideopathic, no known cause, 40% of those are probably hereditary and either not diagnosed because the proper testing isnt done or unable to be diagnosed at this time with the current technology. I wonder what percent of a diagnosed cause of PN are incorrect and should be ideopathic until the testing process is done. This group would/may include people who have diabetes, or have drank in the past who would have these causes diagnosed for their PN without any other testing or with no testing beyond an emg. We have met a number of people here where that is the case. With pre diabetes , which i believe is the cause for some or maybe many of those with unknown cause of their pn, how many doctors are just grabbing onto that cause without looking at the others or testing for anything beyond glucose tolerance or A1C or even fasting glucose. How many people like Jaime who because they have carpal tunnel in one hand or suspected carpal or tarsel tunnel have that cause attributed to them and are operated on and the rest the symptoms or areas of involvement ignored until they cant be any longer ?
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