Hi Deb,
We took our son to the ER multiple times and then we were finally told to see the diagnostician at CHOP - that is how we received the diagnosis. He tried to treat my son with meds, but they didn't work - we were then referred to Dr. Sherry - he confirmed the diagnosis and we are waiting for the physical therapy treatment. This all started in Sept. and I can say we were finally diagnosed by Dr. Sherry in Jan. - but we are still waiting for treatment - very frustrating. We have an appt. with him on Monday - I'm hoping for some good news.

Where is your grand daughters RSD? I hope you have better luck with this group - they have been very helpful for me. I'm sorry if I am late getting back to you - we went on vacation to get my son exercising in some warm weather - I think it was helpful!!

I wish your grand daughter well - I'm here if you need to talk.

Terry