Hi to all fellow RSD friends,
I have been reading on the old forum but was unable to participate as I really got confused trying to log on. We changed providers and everything got mixed up. Nevertheless, now I am able to finally post and reply.
I am so happy to have this forum to read daily. You are all to be admired for suffering through this miserable condition.
I have RSD, Fibromyalgia and Meralgia Paresthetica. The story of it all is too extensive to explain. It started as facial pain from a dental procedure which stretched my masseter muscles (1984). Over time it has spread throughout my entire body: face, neck, fulll back, arms, hands, knees, feet, etc. I am in constant pain almost everywhere and take no pain meds as they do not work. I tried about 25 or so at highest doses possible - including morphine, ketamine. I saw Dr. Schwartzman for possible IV Ketamine but was not a candidate as mine is so severe and had it for so long. Tried alternative therapies which only made me worse (acupuncture, cold laser, etc.) I can not have any invasive procedures(morphine pumps) as they trigger it off even worse. I was forced to retire from my job as a Reading Specialist(which I loved). Unable to walk any distance - just house to car -use carts in stores. Have a wonderful husband and adult mixed lab dog.
Today is a beautiful sunny day in PA. Oh how I wish I could get out and walk my dog and enjoy the day. Unfortunately the pain is so bad and my legs are just aching so much. I haven't walked even a block in almost 5 years since it hit my lower back and also got the Mer. Par. An epidural triggered it off ithe RSD and FM in my lower back in 2002. Spread everywhere after that.
Well - my hands are really aching now.
My best to all. I look forward to hearing from any fellow sufferers.
Sydney