Quote:
Originally Posted by lady_express_44
I did not mean to imply that MS neuropathic pain can’t be intermittent, because it is for me too. It was the TOTAL picture, as described, that doesn’t add up to a definition of neuropathy to me.
MX7’s clothing issue occurs for only a few days at a time + has been ongoing for many months. It effects her (itchy, tingling) where her clothes are more snug + severe pain is not the primary descriptive.
Is this the way you would describe neuropathic pain . . . because it definitely does not match my experience/definition in any way?
As you implied, there is no rhyme or reason to neuropathy. It most often lasts for several days to weeks, and doesn’t normally repeat in neatly defined areas (as was described by MX7). In your case, as an amputee, it may make sense that at least some of your particular neuropathy (phantom pain) might be more constant (experienced in one distinct area). This area of damage for you is very stable, but that is not normally the case with damage that occurs from our MS.
The most obvious reason that this is not likely to be neuropathy is that the “hurt” feeling was not adequately described or emphasized. We might all have different ways of describing it, but the overriding theme (if our “clothes issue” is from neuropathy), would be the severity of pain and burning sensations.
Even if a person had MS, I would not at all presume that this particular symptom, as described by MX7, is related to the disease. It just doesn’t add up to neuropathy, at least as I know it, and hence should not be ignored as “another symptom that nothing can be done about”. I agree she should mention it and try to find an alternate cause through her GP.
Cherie
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I'm never very good at makeing my self clear in a post, It's not that these things come for only a few days over the past few month.
The waist issues only happened a few days in a row (been going on 3 or so years, and has happened maybe a dozen time or so) most of the time and it's never a blotting things. I just can't handle anything at my waste touching my skin.
The itching thing is just my thighs when my legs are numb and than not every time my legs go numb, just if the jeans are snug on my thighs.
What's been going on for months (everyday) is that I can't wear a bra hardly any more. The straps on my shoulders hurt (I'm pretty sure this is the fibro, remember I DO believe I do have fibro, I don't think I was miss-DX on this one - I have most of the tender points at every check up) but the back band gets me too. This just started up a few months before I started having the numbness from that point in my back and down and odd pain in my back.
I have tried wearing the strap really loss and have tried pulling the back of the strap very low on my back and it didn't help, I just can't handle having anything snug across my back right now.
The one thing I always point out to Dr.'s and nurses that want me to "rate my pain" on the scale of 1 to 10, is that my level of pain is so different from most. I tell them I have given birth to 7 children and have made it to 10cm dilated with no meds and still been joking around and laughing at that point.