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Member
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Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
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Member
Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
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Ok this is a photo taken a few days after Jan 14th,
It's reversed because I'm snapping myself via a
mirror with my neighbor's hideous camera.
I do have Catamenial Epilepsy, but they seem to
strike the highest between Aug/Sept ---> Feb/Mar,
and it had been this way since I first started my
cycle a little after 9½ but before 10 years old.
In addition - I've suffered from tons of ovarian
cysts; and had to have 4 emergency surgeries
to have ovarian cyst removals; had 12 pregnancies
but only 1 live birth (to which I nearly lost that
one at the end of the full term birth even at 2
weeks overdue) - which resulted 11 miscarriages,
painful sex, and I could go on and on - I HATE
E! Even though I was married over 23+ years,
my ex couldn't take it anymore. (I've got titanium
clips so I can't have children anymore)
But even before that I had epilepsies - Gelastics,
Drop Attacks (Atonics), Grand Mals (Tonic-Clonic),
Grand-Mal w/Todd's Paresis or Todd's Paralysis,
Petite Mals (Absence), Jacksonian - but that was
just a little list as a child / teenager; then they
changed the terminology of everything where I
got lost! The Neuro who did a lot of my EEG runs
nicknamed me "scatter-brained" for a reason:
my seizures weren't confined to one location, and
had so many abnormalities, and in addition for
me to have a normal EEG was abnormal. He
made it clear I would never have surgery. (That
was declared DECADES ago)
AND HE WAS RIGHT - this Neuro is so highly
esteemed and regarded and respected by many
Neurologists and Epileptologists; that there's no
arguing with him, for he had been in practice
since 1958 (he's retired now), and his word was
final authority. He knew me exceptionally well.
There are Neurologists, Epileptologists, Professors,
and several Individuals whom I trust - that have
seen my medical records & reports; and to those
Individuals - they've seen a few of my medical
records & reports and it left them dazzled - just
reading the DECADES of this and that and that
and that ....
But as for the Medical Doctors, they've been
gathering it as a case study. One specific Neuro
from way up North desires for me to somehow
find a way to get up there to their Comprehensive
Level 4 which also has a Research Center there too
and so they can run further tests; for one thing -
they specialize in Women's Issues. I really want
to go; but for me to get there is an issue, it would
take me months for me to bike all the way up
there. I'm looking at bus fares and sponsors; to
see if there's a way to do it.
It might be possible for me to head up there from
all the way down here where I reside. They have
so much of my Medical Records, Info, Reports,
etc ... already. The other issue they would need
to work on is the Insurance (I'm in a different
State) so they're looking for a grant / research,
so they keep in touch with me via email.
When I inquired how long I would be up there;
I could be there for a week, 2 weeks, 3 weeks -
if their Brain Surgeon is able to do something
about it, I would have to recover first before I
could be "shipped back home".
So there might be hope, I pray!
:::: crossing fingers ::::
__________________
Sharon
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" Vujà Dé - The feeling you've
never been in here before!"
Daily Feedbag of Zonegran, Clonazepam, and Folic Acid
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