Hi Matia,
No I'm not from NZ but have been there a couple of times. I'm from Melbourne, Aus where the drought continues!!! Last year in March/April (just before the onset of my PN) we travelled the South Island in a motor home. It was Autumn and we stayed one night in the town of Lake Wanaka which I think we all fell in love with - along with Arrowtown and Lake Tekapo and ....I could go on and on!
When I arrived back from NZ I didn't bounce back and remained extremely tired for several weeks until the PN started to come on in full force. When we went to NZ we went with another couple who are ten years older than us and within a couple of days of being home they were back to normal (travelling can be tiring) so then I guessed something wasn't quite right....and from there it went from bad to worse!
I wouldn't put my pain on as high a scale as you. 8 or 9/10 that must be terrible! Perhaps I estimate mine to be between 2 and 5, 24/7. Possibly I am being conservative. I am often aware of the pain and bone weariness even in my sleep which wakes me. Frustration probably sits at about 5/10.
I'm not on any specific medication for PN as yet.....so hope it stays that way. As with all of us, I certainly don't know whether this is going to get better or worse in the future!
Look after yourself!
Quote:
Originally Posted by matia
Hi All
On a scale of 1 to 10 what would you consider your pain and frustrations
to be, I would consider mine to be at least 8 or 9 24/7
Megan -- I got this P/n through taking the drug Amioderone to control Atrial Fibulation , took this drug for 2 1/2 years then felt my feet starting to tingle
, I didnt think much of it until about 6 months later , but by then it was too late , noticed it in the left leg first , then the right leg , it has gone up to the buttoch in the left leg and knee hight in the right leg'. I cannot find a pain killer including Metadone that works at all
Tell me Megan are you from NZ?
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