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Old 02-25-2008, 08:43 PM
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tovaxin_lab_rat tovaxin_lab_rat is offline
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Join Date: May 2007
Posts: 7,009
15 yr Member
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Thanks RiverWild for that post, and Cherie for the information as well.

As for the deaths attributed to Tysabri, they are reported only b/c they are on Tysabri. They are not attributing these deaths TO Tysabri. Any adverse events that occur while a patient is on any drug is reported. I am sure that if you were able to cross reference these patients with other medications they are taking, you would see them listed as deaths under those drugs as well.

They cannot prove that Tysabri caused their deaths.

I have worked with the FDA on more than one occasion to provide accurate information with regard to Tysabri as well as testifying to get the drug back on the market. Accurate information is what needs to be put out publicly for the patient. One of my interviews with a reporter was not accurately reported in a medical journal and I was furious. I called her and told that if she was going to quote me from another newspaper then she should quote me accurately or pull the article. She took literary license and by the time my quote was put in her medical journal I was not a patient with MS testifying, I was a stock holder from Elan...you can imagine I was hopping mad...it got changed! That slant made a world of difference on the information presented at the time.

As Riverwild pointed out, it's your choice. And not all drugs work the same way for everyone. Unfortunately Tysabri was not the drug for me, but I believe in choices.

Educated choices.

Good luck with your decision.
__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
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