Hopefully, the test results will bring you closer to getting a name for all that pain. Then with a diagnosis, you can get much better treatment.

In case anyone else is going through a similar hell of not having a diagnosis, there is another online self-help mutual support network where people in need of a diagnosis help one another. It's called...

In Need Of Diagnosis, Inc. (INOD)
and members in need of a diagnosis to communicate, as well as those who finally got one, exchange information and provide each other with support, through an e-mail list. They also promote changes in the healthcare system to facilitate the prompt and accurate diagnosis of medical disorders, especially rare disorders.

I regret I don't have enough posts here yet to include their website, but you can hopefully Google it.

But more hopefully too, you won't need them at this point.

Take care and hope,

- Ed
N.J. & American Self-Help Group Clearinghouses



"My years as a medical practitioner, as well as my own first-hand experience, have taught me how important self-help groups are in assisting their members in dealing with problems, stress, hardship and pain... the benefits of mutual aid are experienced by millions of people who turn to others with a similar problem to attempt to deal with their isolation, powerlessness, alienation, and the awful feeling that nobody understands."
- former U.S. Surgeon General C. Everett Koop, MD