Junior Member
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Join Date: Oct 2006
Location: in a chocolate haze
Posts: 91
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Junior Member
Join Date: Oct 2006
Location: in a chocolate haze
Posts: 91
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If the neuro thinks it's MG, it likely is, as they don't give those diagnoses out lightly. Sometimes there simply isn't a "black and white" answer as you can test negative on blood but be chock full of MG antibodies (that there is no current test for.) I am one of those people and am going on 10 years of MG hell.
A trial of mestinon wouldn't hurt. However, be aware that it doesn't always work too well for double vision. There are no long term adverse effects from a short trial of mestinon and you'll know quickly if it works or not.
As for the nutritionist, etc. Go for it--to improve your overall health. However, don't expect it to change the MG symptoms. If it were that easy, I'd have been cured years ago. I've tried everything from acupuncture to vegetarianism and here I sit, with double vision.... (on a ton of regular meds, too.)
Good luck,
Missy
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